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Portrait of Jessica Almqvist. Photo.

Jessica Almqvist

Professor

Portrait of Jessica Almqvist. Photo.

The Human Right to Science and the Regulation of Human Germline Engineering

Author

  • Andrea Boggio
  • Bartha Knoppers
  • Jessica Almqvist
  • Cesare Romano

Summary, in English

There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline.

Department/s

  • Health Law
  • Public International Law

Publishing year

2019-06-24

Language

English

Pages

134-142

Publication/Series

CRISPR Journal

Volume

2

Issue

3

Document type

Journal article

Publisher

Mary Ann Liebert, Inc.

Topic

  • Law

Keywords

  • Human rights
  • Mänskliga rättigheter

Status

Published

Research group

  • Health Law
  • Public International Law

ISBN/ISSN/Other

  • ISSN: 2573-1599